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Posts Tagged ‘medical update’

Just when I thought things were turning around for me, health wise, they seem to have taken a side road. I might still be okay with things but I did take a detour.

Those of you that follow me on Facebook probably know that last week I ended up in the Emergency Room due to chest pain, numbness on my left side, and a rapid heart beat. After examining me, they admitted me for more tests. I spent two days there. At first they thought it was a stroke but tests showed it was not. Then they focused on my heart. We know I did not have a heart attack but we don’t know what caused the symptoms. The next step would be an angiogram¬† but because that is more invasive, they are holding off on that until we figure out if my symptoms will go away, stay the same, or get worse.

For now, I feel better and I am optimistic that things will improve. I am baffled by the symptoms. The rapid heart beat seems to come and go. The chest pains have stopped and the numbness is almost completely gone. They prescribed a medication to help my heart manage stress and some nitroglycerin pills. The thought is that if I get chest pain and the nitro helps it, it is most likely angina and they can treat that. If the nitro doesn’t help, then I have to get to the hospital as soon as possible and we’ll go from there.

It’s scary. I won’t deny that. I am trying to focus on the fact that I am feeling better and I am hoping that the symptoms won’t recur and trying to get back to the place I was when I wrote the previous post here about the little forward steps I was taking with my medical condition. Crossing my fingers. Saying some prayers. Shaking my head and wondering what else will go wrong!

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Note: This is a copy/paste from the post I just put up on Face Book. It’s difficult to write these updates and not forget things so it was easy to just paste it here.

On Thursday I got a call from my gastroenterologist saying the needle biopsy was benign but he doesn’t think it’s benign. He has actually seen it and was the first to detect it. He’s worried that we are not getting the full picture and might be lulled into thinking that all is okay. He really thinks it’s malignant. He said go ahead and see the oncologist today while I wait for the authorization to see a surgeon. His feeling is that the more eyes on my case, the better; another doctor may have had a similar case.

Today, the oncologist was also stumped and could only recommend either another biopsy, this time with an arthroscope as that will give them a better and bigger tissue sample even though it will be more invasive than the needle biopsy I had last week.

The tumor is on my right side and many of you will remember that I had a serious surgery two years ago during which a very large fluid filled cyst was removed from my right ovary. The tissue removed was biopsied and came back as borderline malignant. None of the current doctors had done a full health history so they didn’t know this. I felt it was relevant because both instances involved my right lower abdomen.

Once I explained all of that to the oncologist, he was able to access my records from two years ago and found that the growth two years ago was a “serous tumor” which he said are almost always benign. So now his theory is that the current tumor is also a serous tumor (not a misspelling) but is probably benign. So he wants me to stop worrying about it for now until we get the next biopsy which will hopefully give us a more complete picture of what is going on. So while I have some surgery coming up, it might not be a horrible thing. The tumor has to go so we can biopsy it and see what it is and also to prevent it from spreading to other organs and/or becoming a worse kind of tumor with a higher incidence of malignancy.

 

The oncologist is also going to try to present “my tumor” before his “tumor board” which meets Tuesday (the 11th). The tumor board is an opportunity for oncologist to present a case which is unusual or difficult and try to get input from other top surgeons. It’s up the hill at Oregon Health and Science University, a teaching hospital. So maybe that will help shed light on it!

So I wait some more. Hopefully I will hear from the surgeon and get to schedule that soon.

Thank you for your continued support. I cannot tell you what a huge difference it has made. It’s a very wonderful feeling to know that I have so many people to lean on. Thank you. Thank you. Thank you!

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